In Other News, Cancer Still Sucks
We found out yesterday that a friend of Amy’s passed away last week from complications of leukemia/lymphoma. From everything Amy says, this was an incredibly good-hearted and compassionate person. So we’ve got the grief over losing a good person, as well as all of the fear this stirs up for our own situation.
Not much has really changed since last month. Amy finished up another round of chemo on Monday, so she’s pretty wiped out. There are some cumulative effects, so the exhaustion and stuff gets a little harder each time, but she’s getting through it.
The next step is another round of scans to see if she’s in remission and decide whether we can move on to the bone marrow transplant. We had a consult with the bone marrow transplant director in Detroit a week or two back. There are still a fair number of unknowns — not only the scan results, but whether her bone marrow is healthy enough for an autologous transplant. That’s where they use the patient’s own stem cells rather than getting a donor, which is what we’re hoping for. (Faster recovery, no rejection issues.) But her younger brother will be getting tested to see if he’s a match, just in case.
We meet with the oncologist again tomorrow. Hopefully we’ll get things scheduled soon, because all this waiting and uncertainty sucks.
I’ve been continuing to work to get the house ready. Chemo suppresses the immune system, and bone marrow transplant does the same, so there’s a lot of worry about potential infections and such. We’ve got people ripping out the gross carpet in the basement today, replacing it with vinyl laminate that should be a lot more sanitary. I’ve done a lot of dusting and cleaning and decluttering. It’s never going to be hospital-level sanitary, but we’re making progress.
I think we’re all feeling a bit burnt out by everything, but we’re getting through.
Greg van Eekhout
May 15, 2019 @ 11:35 am
Oof, I’m sorry to hear about Amy’s friend. I continue to wish best outcomes for you. Thanks for the update.
Jim C. Hines
May 15, 2019 @ 11:36 am
Thanks, Greg. Yeah, that one hit hard for so many reasons…
May 15, 2019 @ 11:37 am
Thank you for taking the time to update us all. Your wife’s journey on this is stressful and terrifying on so many levels. Know that many of us out here are praying and hoping for things to get better. We got the world, you get you and her.
May 15, 2019 @ 11:38 am
Thinking of you guys.
Denise M Beucler
May 15, 2019 @ 11:39 am
So I don’t know if this is in your area, but this is a service that helps women with cancer with house stuff. In case cleaning is something you can delegate to lighten your family’s load. https://cleaningforareason.org/
Best of luck.
Jim C. Hines
May 15, 2019 @ 11:40 am
Thanks Denise – we put an application in with them last month. Hoping to be able to get something scheduled soon.
May 15, 2019 @ 12:28 pm
Something amusing to consider – if your wife gets a bone marrow transplant from her brother or another male donor, once those cells start working she will read on most genetic tests as male.
My friend Martha refers to her “boicells” because “Martha and the BoiCells” sounds like a great name for a doo-wop cover band.
Best wishes to you both.
Jim C. Hines
May 15, 2019 @ 12:40 pm
Wendy – That could definitely be entertaining. Technically, would that mean I’m in a same-sex marriage?
May 15, 2019 @ 1:09 pm
(wanders past Jim’s last comment … making no comment…)
(reallyreally want to)
My best to Amy. And yourself. As always.
May 15, 2019 @ 9:31 pm
Thank you for the update. I’m so sorry for the news about your family friend. However, that has no bearing on Amy’s case although it is hard to keep it all mentally separated. You are doing your own thing and every case is different.
Thinking of you and your family and sending all good wishes.
May 16, 2019 @ 10:20 am
**hugs** I wish I could do more for you and your family, but for now all I can do is this. **hugs**
May 17, 2019 @ 5:18 pm
My condolences to Amy on the loss of her friend.
I hope the scans show only good news. Continuing to keep you both in my thoughts.
May 18, 2019 @ 9:09 am
Good luck to all of you.
May 23, 2019 @ 9:22 am
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