Friday should be an official nap day.
Thank you to everyone who attended Amy’s memorial yesterday. It was such a beautiful day, and a perfect location to remember her. I was overwhelmed by the love and support, and I think she would have approved. (Though she probably would have thumped me for a few of the pictures I had displayed…)
I’m so grateful for everyone who helped with the planning and setup and all the rest.
It wasn’t a formal service, but more of a celebration and remembrance with family and friends and food. We were in one of the park’s largest pavilion areas, and we filled it to overflowing. One more sign of just how many people loved her.
Some of us took a little time to talk about Amy, sharing stories and memories and talking about how much she meant to us. I know there were others who wanted to speak, but were hurting too much. Amy would have been the first to hug you and tell you that’s all right too.
I asked my son how he felt after he got up to talk about his mama. He said it hurt to do, but it also felt good. I thought that summed the day up beautifully. It did hurt. It still does, and it will for a long time. But it felt good to be with people who loved her, and to remember and celebrate how amazing she was.
A few people asked me to share what I said at the beginning, so I’m copying that below.
All of our love and gratitude to all of you who’ve helped us through this past year, both in person and online. Your support helped a lot. Thank you.
Amy’s memorial/celebration of life will be Sunday, September 8 at 2 p.m. at the Overlook Pavilion in Burchfield Park. 881 Grovenburg Rd, in Holt.
Amy worked for a time at St. Vincent, which does a lot of good for children and families. And the Leukemia Foundation supports other blood cancers as well, and doesn’t limit that support to children. They helped us with copays and other expenses in recent months.
I’d also ask that, if you’re able, please consider donating blood or platelets. Chemotherapy kills cancer cells, but it also damages the bone marrow, which is where blood cells are produced. Amy required a lot of transfusions to get her through chemo. Those donations make a real difference to people fighting cancer and other diseases and injuries.
For those who might want to send cards, they can be sent to our home address if you have it. If not, you can also use:
P.O. Box 521
Holt, MI 48842
(I hope you’ll understand and forgive my not posting our home address here.)
There’s so much I want to say about her, and so much I’ll probably be writing in the future.
For now, know that she’s the strongest person I’ve ever known. She fought this thing so hard… Again and again, she surprised doctors and nurses with her strength and determination. That fight gave her the chance to see her son start high school, her daughter start her first real job. It gave us nine more months to be together and love each other.
She dealt with chronic pain for most of her life. Cancer and treatment made that worse. But at the end, she wasn’t hurting. She was comfortable. Her children were with her, along with me, her parents, and others who loved her.
She worked as a child and family therapist, and the tributes I’m already seeing from some of her clients and coworkers confirm what I already knew. This was her calling and her passion, second only to loving her children. She’s the most caring and empathic person I ever met. She helped and inspired so many people.
A few nights ago, we were able to transfer her to a wheelchair, and I took her for a walk outside the hospital. We got to enjoy the (sort of) fresh air, the flowers and trees around the hospital. She loved going for walks, and I’m so glad we had the chance to do one more.
Our family and a few close friends have been helping out, sharing love and support and grief, so we’re not alone. We’ve got a lot to do… it actually helps me a little to have things to do to keep myself busy for these first days.
I appreciate so much the love and understanding and support you’ve all shared through this. I hope you’ll understand if I’m a little hit-and-miss in responding to email and messages in the immediate future.
I’ve been telling my son the reason it hurts so much is because we love her so much, and as hard as that pain is, would we trade away the love and the time we had with her?
I was lucky enough to have almost sixteen years together with her as a family, and another fifteen as friends.
I’m sure I’ll share more in the days to come.
For now … I’m just so grateful for who she was and how much we shared and how much better our lives were because of her. And I miss her.
Friday was not ready for school to start back up.
- Baby meerkat pics! Spellcheck wants this to be “Baby marketer pics,” which probably wouldn’t be quite as cute. But you never know.
- Huge (75,000+ pieces) LEGO recreation of Deep Space 9.
- 50 photos of love.
- Birds being jerks.
We’re still at Henry Ford Hospital in Detroit. Amy received the first round of RICE chemotherapy about two weeks ago. It appears to have helped some against the tumors, but it also hit her pretty hard. So we’re working to get her blood counts back up and help her regain her strength so she’s able to tolerate continued treatment.
Still a long road ahead of us to get her strong and healthy enough to be able to do the CAR T-cell procedure, which is the one that holds some hope for a cure. But she’s still fighting, and the rest of us are doing what we can to help.
I honestly don’t know what else to say here. Mostly, we’re just holding course and holding on…
Monday, right? It feels like a Monday out there.
- Guy Edits His Cat into Hollywood Movie Clips
- Photos of “Fun” from Around the World
- Animals Surviving the Heat
- Hummingbird Wings are Made of Rainbows. Who knew?
A brief personal update.
The GEMOX chemo my wife began at the beginning of June has been ineffective. After meeting with the oncologist this morning, we’ve decided to try another type of chemo called RICE, which we’re hopeful will get her well enough for the CAR T-cell procedure. She also received another dose of radiation this morning to help try to shrink the various tumors.
She’ll be transferred to Henry Ford Hospital in Detroit this afternoon. If all goes well, she’ll be there for at least 1-2 months of treatment and recovery. Possibly more.
This obviously isn’t the news I was hoping to be able to share by this point in the process. But Amy’s not giving up. She’s fought through so much already. I knew she was strong, but I hadn’t realized just how strong…
Thank you all for the ongoing love and support. It helps.